It's no secret that COPD is a taker and a taker. Pictured is hubby taking his afternoon Nebulizer. He'd be angry at me for grabbing a shot through the stairs, but it is what it is.
COPD is pretty unforgiving. It takes everything from a person and if there are other health issues, it makes it all the harder. [Generally there are always co-health issues to go along with severe COPD]
Most mornings he gets up and comes in the kitchen for coffee. I take his 02 readings right away. When he takes his CPAP off and gets dressed his 02 drops to the low 80's. Anything below 92% is dangerous. He has a hard head and won't hook himself up to his concentrator.
Below 92%, your brain starts to malfunction, as well as all of your organs.
They did an ultrasound and then it was recommended that a needle biopsy be done. That needle biopsy turned up 'not enough' cells and samples to make a diagnosis.
Rich was against the ultra sound, I convinced him to do it. He was against the biopsy and he was not happy but did it.
Now the lump has swelled. It causes him no pain or difficulty in swallowing or breathing. But he is not a happy camper. He told me if we'd just left the d...ned thing alone he'd have been happy.
The doctors recommend a removal of the 'nodule' and then send it for testing and he emphatically said....
NO.
I can't blame him, he has gone through so much in the past 8 years that it seems cruel to put him through anything more.
In fact he is becoming more at peace with his future. Even as far as to make sure that I have what I need when he is no longer here. Odd to be making plans like that, but we are at that point. We actually set things up 12 years ago. That was 4 years before he was diagnosed with throat cancer.
The nodule could be benign but he doesn't even want to address that.
So we meet each day as normally as we can and I take care of him and everything on the farm. Once he is done with the farm we will move off from it. Oh, I'd love to stay here in these beautiful hills forever but that won't be practical at all.
The fact is, he wants to stay here until he dies and then he wishes me to move on to live in a place where I don't have so much work to do. Our place was remodeled and it IS a solid low maintenance home. However, the remote location will make things like getting groceries, medical care, and help much harder as I age.
We've decided that I should move to an area where I have access to public transit and the ability to have groceries delivered if I needed that done. Location, location, location. Since I [we] have no relatives living in this area, I will move closer to my son.
One of my new and younger neighbors has voiced her desire for me to stay. She said she would watch over me. In truth, I am not sure I'd want her to. She is now learning to deal with her own parents who are aging. She can't care for her parents, work full time, and raise her children...and then take on someone like me.
The plain truth of it all is that I am tired of being the adult all of the time. I once asked his daughter to give me relief. Her answer was no because she had to make sure her husband had his lunch packed for him daily.
Her children come to visit more often than she does. My grand daughter asked me last weekend if I didn't think it would be smart to leave the farm after Grandpa was gone. I would be too alone out here.
My son had voiced the very same thing. So had my other grand daughter who had come to visit a few weeks ago.
What next? We actually have set a plan in motion. Well, at least an option.
Hubby and I agree, when he is gone, I will move back to the town where my oldest son lives.
I like the "don't make plans, make options". It is hard to age. You think of things you need to decide that you never knew you would have to decide. I'm sorry that things have changed for your husband. It is a hard thing to go through, a harder thing to live through. It is smart to have options in place. I watched my neighbor whose husband went into a horrible three decline. When he passed in January, she had nothing in place. They did not even have wills. She had no idea of insurance. It's hard but we have to be grownups.
ReplyDeleteI hope you don't have to consider your options for a long time. I know how much you love where you are planted right now.
I do love where I am at now but I don't want to really stay here after he is gone. It will be time to move forward. It may take a few years but I will go.
DeleteOptions are good, we talk about that all the time. We have all the legal stuff in place, bank accounts and land. I love our home in the woods, but I know I cannot stay here forever.
ReplyDeleteI am sorry to hear of the refusal for medical treatment...but in a strange way I understand.
Email me any time:)