Also known as Major Depressive Disorder.
Every single time Rich's MDD has come along [it runs in cycles, meds work for a while and then...] ... well then it creeps in slowly.
First red flag is him being extremely critical of every THING I do. I didn't feed the mules properly. I should be standing and watching the 300 gallon tank fill. The coffee tastes bad [I make coffee to his specifics each morning separately than my own coffee].
The sun is shining. The sun is not shining.
~~~~~~~~
I went into the woods to get that very first black morel mushroom. I thought it would make him smile.
He went off on some strange offshoot and gave me a lecture regarding mushroom hunting. He then went on to tell me about some weeds I had to go work on in the forest. I mentioned that the jewel weed was there in 2010. An argument ensued.
The grand kids in Jewel Weed July 4th 2010. Yeah, that is the only reason I know exactly what year it was.
[He hasn't been in our woods since 2016.]
Bam. It hit me. His time frame was different than mine.
So.
I agreed with him. Yes, I needed to take care of the Jewel Weed. I didn't even talk about the Dexter Cattle taking care of that for us. Best to let some things just drop.
No sense in trying to correct a memory. He has his own time frame that gets mixed up a lot. I guess I am going to have a long discussion with the Caregivers Social workers next week.
Another thing he has issues with once in a while, is that he thinks he is a randy 19 year old. Full of vim and vigor. A sexual god if you catch my drift. This is awkward but I'm going to address it here or my head will explode.
He thinks I am mean when I rebuff his strange advances. He forgets that once he tries intimacy it all falls apart. He can't breath and he can't do what he wants so he gets very angry or very depressed. I am then stuck in the house with clouds of charged particles in the air.
It is like walking on nuclear egg shells.
He cannot walk to the shed without a rest. He struggles when just getting dressed or undressed. But in his head he is a sexual god and it is my fault when he isn't. There really is no win-win to this at all. His is a fantasy in some ways which lives in his head. With mild dementia it is all true. He is the god of sex.
Well...until he gasps and asks me to set up his oxygen that is....
So instead of worrying about life with the god, I keep my head down and do the mundane things that I am supposed to do. I go for walks. Which became an issue in itself.
He decided that since I had the vaccine I should sleep or sit on the couch. I shouldn't go...go ... go.
His depression. It is insidious and creeps up getting worse and worse until the black hole swallows him. His latest med change was a last ditch effort and it worked for a pretty long time. Just over a year.
I'm his caregiver. There are days when I want to close the door and walk away and keep walking never looking back.
But I am not that kind of person.
He struggles with his mind. He knows that he used to be young strong and invincible and somedays he still thinks he is. Then he is angry with the betrayal of his health and mind.
I am the only other living soul here on our farm. So I get to be the Fall Guy.
I miss my friend.
I miss my sense of adventure and doing my own thing whatever that was.
I've bowed over and over to the goddess of MDD.
Hi Val, I understand that it is exhausting...sometimes it is frustrating too. You can only do what you can do...the 19 year old must have been interesting... a sex god...indeed. I have no words of wisdom for you...as you know everyday is different and ever changing...I am just an email away! Be kind to yourself.
ReplyDeleteThose with trauma during younger years of development often get mentally stuck at a certain age. This is his age for certain things.
DeleteHugs to you Val.
ReplyDeleteJust sit beside me and let me hug you.
No strings, no needs, no wants.
Close your eyes and relax. Think of nothing.
At this point the only thing I want is a break from being a 24/7 Caregiver who has not had a break in 561 days. But who is counting?
DeleteThe VA has offered no relief?
DeleteHave you asked them pointblank?
I know that there are places out there that offer day programs , like a minder in groups at group homes that offer day sitting.
Oh , wait, you said you are COVID wary.
If they are bed ridden there are visiting nurses and programs that come and help with bathing and other things.Being mentally bed ridden, maybe that would count. Our local hospital has a program like that , I think medicare covers it. I don't know his age but if he is disabled I am sure that would be covered.
I see I commented to you before.
There are also caregiver sites out there that should have some pretty good ideas on getting a break.
Does he have any men friends from before, who might come and at least visit with him.
I am glad at least he will go to the Dr. with you.
I think YOU need an appt. with someone in the VA to direct you to get help.
The VA says he needs care is indeed glad I am caring for him. I applied for the CareGiver program and we were assessed. Their assessment was not in person b/c of Covid last year.
DeleteThey replied that the 'applicant' does not meet criteria. They felt he was able to complete his ADL's.
Of course he was not exactly 'truthful' in his replies on the phone. Most people that need help will not admit it to others because it is shameful.
At this time Medicare has no actual specific reason that would be ordered by a local doctor for him to have any in home services. The VA is 90 miles away and uses local services in our rural area. Those services are very lacking. I went through this process with the county social worker not long ago with my MIL.
He also is very against having anyone who is NOT me or family coming into the house or onto the property.
Covid has added a new dimension to the equation of course.
I am going to appeal and ask for a re-assessment for him for more support from the VA. At least then I could privately hire someone and pay them out of my pocket.
I remember dad had an interview with someone about getting disability(not from service, regular disability), it was over an hour long and face to face.
DeleteThey granted it. That was before his major stroke. So he wasn't even having the physical symptoms included in that yet.
Appealing sounds like a must do, do the doctors that see him think he is capable of taking care of himself.
I don't see how.
So your mil knows what is going on? Does his daughter have any idea?
MIL is gone, she died last summer. His daughter said her dad was a drama queen. He is a bit, but then again one has to remember that he has mild dementia along with PTSD and many other health issues.
DeleteShe knows what is going on...but doesn't really get it. She has a family and elderly relatives that she helps out too. Her father is not on her priority list as we are 2 hrs away from her.
Doctors have not seen him face to face for over a year now.
Next time you go to emergency room for something ...what do you think about hospice?
DeleteHospice and Palliative care are now in our sites.
DeleteTHIS IS FROM AN ARTICLE I was reading....
ReplyDeleteWhere is palliative care provided?
Palliative care can be provided in hospitals, nursing homes, outpatient palliative care clinics and certain other specialized clinics, or at home. Medicare, Medicaid, and insurance policies may cover palliative care. Veterans may be eligible for palliative care through the Department of Veterans Affairs. Private health insurance might pay for some services. Health insurance providers can answer questions about what they will cover.
Visit the National Hospice and Palliative Care Organization website to find palliative care near you.
Yes, we have been in Palliative Care already once in 2015.
Delete