Thursday, December 19, 2024

Almost 20 days out from Prolia

Well here we are nearly three weeks from the injection of Prolia aka denosumab. I am still alive and kicking! 

Let's call it so far, so good. During our frigid spell last week, my hands hurt, I got a slight headache, and I had a shoulder ache. So all my interior alarms went off thinking I was in for some issues.

Truth is, none of it was an issue. I did as the nurse told me to do, took a Tylenol and drank lots of water. The thing is, none of the aches and short lived pains may have been from the medication side effects.

By later in the day I felt my normal self whatever that may be. As long as I could get outside [which I did in the frigid temps] and move around I felt much better. Moving makes me feel calm and takes my mind off from most things.

I spent hours with the VA Website trying to get my husband's email account [similar to an account used by health care centers] upgraded to their new and improved and super duper secure sign in change over.

Let's just say that if I were an aged disabled veteran with both memory issues AND PTSD, anxiety, and depression, the computer would have been thrown through a window and promptly beaten to a gazillion pieces.

I finally got through most of it and came to the very last step. The site asked for a phone number that is in hubby's name. So I put in our land line which has belonged to hubby since 1996. The same phone number that the VA uses to contact us.

The message came back to me: Phone number incorrect or not found. After 3 tries I got another message. 
You will receive a code to finish this set up via USPS in 5 to 10 days. Please return and use this code to confirm your identity.

I had other things to take care of that day, but shut my laptop down and walked away from it.

I had enough.

However, I feel good and am encouraged with each day regarding this new medication for Osteoporosis.

Now on to the next step. Getting Hubby ready for his grandson spending the weekend and his daughter and her hubby showing up for a visit. 

One day at a time. I hope your weekend is quiet.

We are getting a Winter Storm.


Tuesday, December 3, 2024

Prolia (denosumab) Injection

 So yesterday was my first jab of denosumab aka Prolia.

The weather for the drive to LaCrosse was shiite. Not bad like a snow storm, but by the time I got into the city of LaCrosse, the roads were slick as a whistle. When I pulled into a left hand turn lane ... ALL the ABS's went off and my 'Ru slid in protest and stopped.

It was one of those moments where you cuss under your breath and hope that no one else behind you does the same thing and whacks you in the rear end. The wait for Valet parking was long. Long enough for me to pull out of line drive around and then pick another parking area to use.

I walked back to the Clinic and Hospital and noted from that the time it took me to park far off and walk back ... none of the people waiting for the Valet had been taken care of yet. Well, that's a mid Monday morning for you!

I think the Valet staff was probably out spreading salt on the walk ways. 


That is all beside the whole point of going in to get the 'jab'.

I was nervous as all get out, let's just say that. When a nurse named Kayla called my name I stood up and followed her.
She had the most gracious smile. She looked so young which reminded me that on the outside, I looked like an elderly lady [Hubby says Lady is not the correct word...he prefers Wild Old One].

She had me sit in the chair and then she started to go over why I was getting denosumab...she quipped that Prolia was so easier to say. She said I could have the shot in the tummy or the back of the arm. 

I picked the back of the arm. She also said that we'd go over the list of things I needed to know after the jab so she could make sure I did not have an allergic reaction. Hey, and the shot didn't hurt! I did not cry, stomp my feet or even try to run from the room!

As she started going over the list and what to do...I commented that I'd read so many BAD things about Prolia but also heard good things from another person [Thanks Boud!].

I know that people trash-talk medications online don't necessarily represent the overall consensus of reality. So I asked her about all the terrible stuff I'd read on the 'net'.

Kayla's smile was so comforting as was her attitude. 

"I generally receive very few calls on this medication." 

We chatted about other things while I waited the allotted time. This nurse made my morning. 

So. What to watch out for? This medication may lower your resistance to fighting infections -- so for the first few months -- well, that is obvious. Since my husband is health compromised we don't allow anyone with colds to visit. There can be low back pain, muscle pain, joint pain, stuffy nose...the list isn't too long or terrible, but Kayla asked me to call if these things felt overwhelming.

So how is it going so far?

Nothing. The jab site doesn't hurt. I don't feel any different and my attitude is very positive right now.

Kayla assured me that there are ways to combat issues that could show up but also assured me that most of the time there weren't problems. Most of her patients tolerated this treatment well.

Comment on my paperwork: 
Age related Osteoporosis without current pathological fracture


The drive home was unremarkable. 

Again, I will say...if this was a medication that I needed to stay alive. I probably wouldn't hesitate. And in a sense, this is a medication that I'll need to stay active and upright. 

Would it be different if it was a diabetes medication that kept me from becoming comatose?

All choices are personal. Let's see how this one plays out.

I will continue to do Legend's CrossFit which is a toned down exercise program twice a week at my local gym and continue with hiking like I normally do.